May is National Stroke Awareness Month and I have a great medical miracle story to share. An adorable South Carolina toddler,
Bailey Coates, was treated with her own umbilical cord blood to reverse
severe brain damage caused by a Perinatal Stroke. The outcome was
remarkable! You can
check out Bailey's FB page and read the interview below to learn more..
1.) What made you decide to bank the cord blood?
We
chose to bank our children’s cord blood because it seemed like an
investment worth making. When we were pregnant with our son my
father-in-law told me that they had previously banked our little
brother’s cord blood. That made me think about what cord blood could
potentially do for our family and I began my search into this new,
unknown world.
I
quickly realized how valuable cord blood was, and once it was gone
there was no getting it back. With Alzheimer’s present in my husband’s
family the decision was made - we were going to bank the baby’s blood.
The next question was which company to use.
2.) Why did you choose StemCyte?
When
we started down the path of which bank to choose there were two big
contenders in the arena, CBR and ViaCord. I sought out information from
both companies online and was quickly tracked down by their used car
salesman... oops, I mean sales team... and they called me NON-STOP! I
work in the customer service field and their customer service was
horrible, unless you enjoy being stalked.
Soon
after dodging the other companies aggressive advances I was sitting in
my doctor’s office when I saw a brochure for StemCyte. I figured it
couldn’t get worse than the other banks and my doctor said they really
worked with military families so I called them.
They
were simply amazing and I LOVE that they have a public bank. When I
called to inquire about their services they invited us to come to their
open house that included a tour, food, belly photos, and an ultrasound. I
was sold; no pregnant person passes up that compilation of items.
When
we went to the open house we were so impressed with the facility. The
staff was amazing, the tour was eye opening, and the other goodies were
the icing on top of an awesome day. That day I saw their public AND
private banks, and all the hard work that goes into each of those. With
StemCyte providing a LifeSaver Guarantee and holding extra
accreditations for their public bank I was really impressed, my mind was
made up. Before walking out of the open house we had paid for our
banking with Care Credit and had our kit in hand.
3.) How did the medical staff respond to your wish to bank blood?
Having
banked both of my children’s cord blood I can tell you that we had two
very different experiences. In San Diego, where I had my son, cord blood
banking was pretty typical. The doctors saw the box, the nurses knew
what to do, and it was all considered normal practice.
On
the other hand when I banked my daughters cord blood in Florida doctors
and nurses were not well versed in cord blood collection. At one point
my amazing doctor had to call the labor and delivery unit to see if they
were even able to collect the cord blood, they were. Thank God there
are very clear instructions for the hospital staff to be able to collect
the blood inside the box. When my daughter was born there was one nurse
who had previously done a collection and she was showing two residents
how to collect the blood. They did great and were able to get a great
collection. That collection has been used for three transfusions at Duke
University and has one bag that is still banked for when there are
further medical advancements.
All
in all each and every provider that we have encountered over the last
three years has expressed that they are elated that we banked and that
they think it has done a world of good for our Bailey.
4,) Obviously
looking back banking the cord blood turned out to be the perfect
choice. What if she hadn't had the brain damage due to stroke? Would you
still be glad you made that choice?
Banking
cord blood was an easy decision for us - it’s an insurance that you
hope and pray that you never need to collect on. Overall the first year
of banking cost less then our television! It was always the right choice
for our family. Although, we ever knew what an amazing change it would
make in Bailey's life. I didn’t even know that children could have
stroke; I didn’t know that children could use their own cord blood. I
thought it was used for cancer - that they were doing other studies on
many other illnesses and diseases and I thought it was always used for
family members. Little did I know that my princess would use her own
cord blood, not once but three times within her first year of life. I
could have never imagined that doctors would say that the only reason
she has use of her arm is because of the cord blood transfusions she
received.
We
won't ever know for a fact that the cord blood is what made Bailey’s
life what it is today because they are still conducting the trials at
Duke. But being her mother I know wholeheartedly it was the right choice
to bank her blood and to give it back to her to aid in the recovery
from her stroke.
If
Bailey never had a stroke I would still be completely content knowing I
banked her cord blood. We have my son’s banked and I pray we never need
it, but I know if he ever does need it, it will be there. Being an
active member of the Children's Hemiplegia & Stroke Association
(CHASA) community I have spoken to MANY families who expressed that they
wish they would have banked their child’s cord blood but I have never
spoken to a single parent that expresses regret that they did have that
extra insurance for their child’s future, their cord blood.
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