The Charlotte + Gwyneth Gray Foundation is raising money to help cure Batten disease.
Batten disease is a rare genetically inherited disorder which belongs to
a group of progressive degenerative neurometabolic disorders. This
particular variant can differ significantly among cases, making it
difficult to predict. Through it’s estimated that less than 10 children
are currently living with this variant, Batten disease can leave
children blind, immobile, cognitively impaired, and ultimately leads to
death somewhere between the ages of 6 and 12.
Gray Foundation from Anaconda Street Productions on Vimeo.