The Tourette Association of America (TAA) is working hard to increase social acceptance and tolerance for people with Tourette Syndrome. People with Tourette Syndrome have long been misunderstood and mocked for their uncontrollable symptoms which can lead to long term effects on their mental health. It is estimated that 1 million Americans are living with Tourette Syndrome or a Tic Disorder – and an alarming 50% are going undiagnosed. The complexities of this disorder leave the community misunderstood, overlooked, and mocked for their uncontrollable symptoms.
Tourette Awareness month starts May 15th and runs through June 15th. To mark the occasion, the Tourette Association of America is hosting the 2021 Virtual Conference for the Tourette Syndrome and Tic Disorder community on May 14 – 16, 2021. The virtual conference provides a forum for the Tourette Syndrome and Tic Disorder community to learn and engage with each other through a variety of web-based sessions. Registration for the conference is free and open to the public, and the schedule is available online.
Any interest in covering the virtual conference and speaking with our CEO Amanda Talty and rising leaders. They can speak about the myths and facts about Tourette Syndrome, as well as share personal experiences. A youth ambassador can also be available for interviews if needed!
More information
WHO
The Tourette Association of America (TAA)
Founded in 1972, the TAA is dedicated to making life better for all individuals affected by
Tourette and Tic Disorders. The premier nationwide organization serving this community, the Association works to raise awareness, advance research and provide ongoing support. The TAA directs a network of 32 Chapters and more than 80 support groups across the country and recognizes 20 Centers of Excellence.
WHAT
Virtual Conference for the Tourette Syndrome and Tic Disorder community on May 14 – 16, 2021. Focusing on Working Together and Living Better, the three-day event will offer a
comprehensive Research Symposium, a Newly Diagnosed Seminar and over 20 highly
engaging educational programs for our community to learn, engage, and connect with each other. In addition, there will be accredited programming offered for education and health professionals to expand knowledge of the disorder to improve treatment and care.
WHY
1 in 100 school-aged children are impacted by Tourette syndrome (TS) or a Tic Disorders. It is now estimated that 1 million Americans are impacted and 50% are going undiagnosed. In addition, 86% of individuals have at least one other co-occurring condition, such as obsessive compulsive disorder, attention deficit hyperactivity disorder and learning difficulties. These can range from mild to severe and disabling. Individuals, especially children, with TS and Tic Disorders are also impacted by other issues, such as bullying and social exclusion.
WHERE
Virtual
RSVP
CONFERENCE SCHEDULE HIGHLIGHTS
- Tourette 101 for the Community Practitioner: Identifying Tic Disorders distinct from other conditions
- Presented by Keith Coffman, MD | Saturday, May 15 at 6:00 PM EST | CE Credit Available | Register
- A session designed for general and community practitioners on proper diagnosis of TS, contrasted with conditions with some similarities. Will review various ways TS may manifest, and the ways common co-occurring conditions complicate diagnosis.
- Translating Evidence-Based Interventions into Clinical Practice
- Presented by Erica Greenberg, MD, and Joseph McGuire, Ph.D. | Saturday, May 15 at 4:00 PM EST | CE Credit Available | Register
- Although behavior therapy is recognized as the first-line intervention for tic management, it can be hard to find and/or implement these interventions in clinical practice. This presentation describes common challenges that clinicians and families experience and describes behavioral and pharmacological approaches to overcome common challenges that arise when providing evidence-based clinical care.
- Tourette Syndrome and Young Children
- Presented by Wendy Wegman | Saturday, May 15 at 4:00 PM EST | CE Credit Available | Register
- This session focuses on the Young Child from 3 years-8 years old. It can be a complex task to care for these children at home, preschool, kindergarten, and early elementary school. This session will provide an understanding of Tourette Syndrome and possible co-occurring conditions at this age. We will discuss and work together to learn some strategies and accommodations for young children with Tourette Syndrome. We will explore why Early Intervention is key in helping young children overcome challenges through their early development.
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